At iFoam, we create elegant and meaningful merchandise to support those living with Ehlers-Danlos Syndrome. Every stripe, every stitch, every design carries a story — your story.
Inspired by the zebra, the symbol of rare disease communities, iFoam’s mission is to blend awareness with artistry. We believe that EDS awareness can be bold, beautiful, and wearable.
We use soft, sensitive-skin friendly materials, work with EDS creators, and donate a portion of each purchase to research and patient support. Our products are designed for style and comfort — because living with a chronic condition should never mean compromising elegance.
iFoam is more than a shop. It’s a space for connection, courage, and celebration. We listen to our community, co-create designs, and highlight real people living boldly with EDS.
Living with Ehlers-Danlos Syndrome herself, Janka started iFoam to create products that offer both comfort and dignity. What began as a personal project became a growing movement of awareness, empowerment, and design. Her mission is to make people with invisible illnesses feel seen, strong, and supported — one stripe at a time.
Imagine living in a body that constantly defies you. Where a simple walk, a warm hug, or even a restful night's sleep can trigger joint dislocations, intense pain, and a whirlwind of unexplained symptoms. This is the daily reality for people with Ehlers-Danlos Syndrome (EDS) — a group of rare genetic connective tissue disorders that affect nearly every system in the body.
My journey to a diagnosis took over 11 years. During that time, I was told I was clumsy. That I was exaggerating. That it was all in my head. I endured relentless joint pain, unexplained bruising, digestive struggles, racing heart episodes, and crushing fatigue — all while being dismissed as a hypochondriac.
Everything changed when I found an online support group. For the first time, I heard the words "Ehlers-Danlos Syndrome." It led me to a rheumatologist and a geneticist, who confirmed what I had always sensed — that something deeper was going on. While the diagnosis was a relief, it also meant facing the harsh truth: there is currently no cure. Managing EDS is a daily battle, and the medical community still has a long way to go in understanding this condition.
But I believe in hope — in the power of awareness, advocacy, and research. That’s why iFoam exists. With every purchase, you’re helping to fund vital research, raise awareness, and bring dignity and strength to the EDS community.
Together, we can:
Thank you for standing with us.